Tuesday, January 12, 2010

Forum!

We have a forum now to post questions/concerns and suggestions. You can do so for our general mission and progress or also medical questions for me to shuffle through to the Jan 25th meeting at UNC Hospitals.

http://forums.averysangels.org/

Again the meeting is on Jan. 25th with Dr. Helmrath pediatric surgeon, Dr. Marshall attending neo-natologist, the director of large donations Cutler Andrews, the OBGYN coordinator for high-risk pregnancies Maya Lindley, Dr. Helmrath's pediatric surgery nurse practitioner and the president elect of APSNA (American Pediatric Surgery Nurses Association) Lynne Farber, Tara Bristol director of the March of Dimes at UNC Hospitals at UNC Hospitals. I plan on discussing content for the site and collecting their thoughts on the direction we need to be heading, collecting resources, basically picking the brains of everyone who is deep into the care and current research of gastroschisis.

I will be taking any questions anyone else may have to them as well as well as your thoughts on the medical poriton of the site which again will be gastroschisis.org Please either post them on the forum or email me directly at meghanhall@averysangels.org or info@averysangels.org

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